I’ve just
read several blog pieces by mothers who describe autism as a “gift”. One wrote,
“On the day my daughter was diagnosed
with autism I got a gift. I got the gift of seeing God do abundantly more than
I could ever think or imagine, over and over again, for the rest of her life.”
I understand
the sentiment—mothers realize what they’re made of when they care for a special
needs child. I have grown in so many ways since Ryan was diagnosed. I put
myself out there in ways that were inconceivable to me Before Diagnosis. I would never have thought of calling a
researcher or physician I didn’t know and asking them how I could help my child
or what they thought of a new theory. I can’t imagine I would have ever had the
guts to call a TV station and ask them to feature a story about my child, or to
ask people to donate money. There are so many ways I have changed because of
Ryan’s autism.
But to
describe it as a gift? I don’t think my friend’s child, who suffers from severe
autistic enterocolitis that keeps him doubled in pain would call it a gift…nor
would my neighbor’s child who suffers from multiple seizures each day courtesy of
autism. Tell parents who have watched their previously happy and healthy children
recede into themselves, or lost their homes and declared bankruptcy to pay for
the therapy their child needs that they’ve received a gift. My son struggles to
get a word or two out, he has gastrointestinal issues (although thankfully
these are under control at present), and at times, uncontrollable shaking.
Autism is no more a gift than any other lifelong debilitating condition.
Reading this
autism mom’s blog about how God gave her child autism seemed to me to be
romanticizing what can be a debilitating condition, and reminded me of the people who think all autistics are
gifted savants and have retroactively diagnosed Edison and Einstein as being on
the spectrum. Frankly, if you believe in
a god that would afflict your child with autism to teach you a life-lesson, then
you and I aren’t on the same wavelength…not at all.
My child is
a gift. His autism is not.
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