My husband and I are older parents…still I
don’t believe we’re ready to kick the bucket just yet. However, a car accident could wipe the two of
us out together and I have started to think about who will raise Ryan should
something happen to Tom and me. This is
a tough question all parents have to ask themselves, but autism adds a whole
other level of complication. Not
everyone is cut out to raise an autistic child.
I don’t mean just for the extra patience,
tolerance, acceptance and sheer grit required. It takes a level of energy that can be
difficult to muster, even for younger people.
My older sister has generously offered to raise my kids, but I’m about
to drop from exhaustion at the end of the more trying days; I don’t see how
someone older than me could possibly do it.
This issue resulted in a fairly awkward
discussion with my 16 year old son—would he take his brother if something
happened to us? He’s young but mature,
compassionate and very good with Ryan. He understands the issues associated with
autism, and he loves his brother half to death.
After the lead-in, describing how Tom and I had perished in a tragic
accident, it went something like this:
Me: “Would you be willing to raise your
brother—I can’t think of anyone else who could do it. You’d have resources.”
Eric: “Does ‘resources’ mean money?”
Me: “Yes.”
Eric: “Well, it would kind of suck. I want to
go away to college.”
Me: “It would ‘suck’ worse for me and Tom ‘cause
we’d be dead!”
The absurdity of asking a child to raise
another child is something I never thought I’d have to contemplate…but here I
am. Autism derailed the life I thought I’d
have…the one where I go to Tuscany for a month to drink in the culture and the
wine, learn how to cook gourmet food, and luxuriate in the Italian sun (Alright--I
admit this is just a dream!!). But it’s
OK, because this journey has introduced me to the most incredible, amazing
people—my youngest son, who despite so many challenges always has a smile on
his face, autistic children struggling to do things the rest of us take for
granted, and their parents, with their endless hope and patience.
I don’t have to live forever—just long enough
to get Ryan on a path to independence. My teenage son is counting on it.
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